Meet #TeamDevine: Ana and Amy, Alexander’s Carers

Our Alexander’s Care Team supports over 130 wonderful children, and their equally wonderful families throughout Berkshire and the surrounding counties. Despite lockdown, we strive to continue to be there for them for the good days and the difficult ones.

Our dedicated Alexander’s Carers play a vital role in bringing joy and easing the burden on Alexander Devine families. During lockdown especially, they have been helping families cope with isolation, giving families a much-needed break and a shoulder to lean on when it is needed.

This week in #MeetTheTeam, two of our Alexander’s Carers – Ana and Amy – wrote about their experiences of what it is like to support families coping with children with life-limiting and life-threatening conditions during lockdown:

“We think what makes our job so special is seeing the smile on the children’s faces when we are doing activities and also being able to develop special relationship with the families. It is important to build that trust as we help care for the most precious thing in the world to them – their child.  It is such a privilege to be there for these families. And we know it means a lot to them to know that they can lean on us and they are not alone.

It has been quite a challenge to try and adapt our normal ways of working, but much of what we are doing depends on what each family needs. We know it is such a difficult time for them so we help them in whatever we can. As well as much-needed respite, we often help with prescriptions, checking clinical equipment, making video calls, doorstep deliveries or simply a text message. Whether it is hearing their voice or seeing them smile when we arrive at their homes, it means so much to us and we know we can help. 

The families we support are such an inspiration to us. Each day they face challenges that most of us could not imagine, yet their love and determination to make their child’s life as full and special as possible is unwavering. It is so important that we keep doing what we can to help these families create those special memories with their child, especially in lockdown.”





Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and the surrounding counties. Anyone can make a referral to Alexander Devine Children’s Hospice Service and if you think your child may be eligible for our services, please do get in touch.

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Please help us give an enormous cheer to Alexander Devine volunteer Alison, who since 31st March has been out walking laps of her street every day to raise vital funds for our children’s hospice service. 👏

Alison has set herself a target of walking 260 miles (that’s nearly 10 marathons!) which is also the equivalent of walking 1804 laps of her street. She hopes to finish by 18th June and has already completed over 180 miles. Alison, who has supported us for over a decade, told us she was inspired to do something after hearing about the loss of fundraising income our charity was suffering as a result of coronavirus.

Good luck with this incredible challenge Alison!

#volunteersweek #volunteer #TeamDevine
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Our volunteers are an indispensable cog in the Alexander Devine family. Without them, we simply wouldn’t be where we are today and being able to provide the support and care we do to families that need us the most.

Their dedication is even more evident during these uncertain times when although they are not able to volunteer in their usual way, they are more determined than ever to do all they can to help us. They've been raising awareness and sharing our appeal, looking after the hospice grounds, sewing masks for our care team, hosting online fitness sessions, creating and selling beautiful crafts, taking on a whole variety of fundraising challenges, virtual busking and running online quiz nights! They really are an extraordinary group of people.

We 💙 our volunteers! #VolunteersWeek
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Eat cake for a good cause! 🍰

This week you could get your hands on a limited number of exceedingly tasty “Bake Boxes for Alexander Devine” if you live within the Maidenhead or Windsor area.

The culinary talent behind this fundraising initiative is Sam Tonkinson, cousin of the extraordinary and brave Alexander Devine who inspired our children’s hospice service. Growing up he was inseparable from his cousin, who he describes as his “best friend and reliable alibi/confidante when we were causing mischief, which was always”.

Charity boxes are £12 and include delivery to the local area. All profits will go to helping our children’s hospice service continue to be there for seriously-ill children and their families.

They contain:
4 x Homemade scones
4 x Chocolate Fudge Brownies
8 x Shortbread coins

Limited number available and to place your order please email:
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Inspected and rated Good by Care Quality commission
Registered with Fundraising Regulator
Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.