Family stories

Meet some of the extraordinary children and families that we support

Jude and his mother

Aidan

Five year old Aidan was born with a rare condition called cystic hygroma. His condition requires daily medical management and affects his breathing, eating and speech.

Jude and his mother

Keanu

Shortly after twin boys, Keanu and Bodhi were born,  joy quickly turned to devastation when Keanu fell ill with meningitis, leading to severe swelling in his brain. His family have had to come to terms with his illness and life-long care needs.

Jude and his mother

Talia

Four year old Talia was born with a number of serious medical conditions. She needs 24/7 care and Alexander’s Care Team gives her family the vital support they need to cope with every day life.

Jude and his mother

Jude

Here his family share their story on coming to terms with Jude’s condition and how support from Alexander Devine Children’s Hospice Service is helping them cope with everyday life.
Riley and Stanley

Riley & Stanley

Shailza, the boys mother, shares some insight into life with her boys and the invaluable support she gets from Alexander Devine Children’s Hospice Service.
Anna Rose

Anna Rose

Anna’s mum, Kay speaks of the vital support the Alexander Care Team gave to her and her family in helping to cope with the impact of Anna’s condition and loss of her beautiful daughter.
Jude and his mother

Kia

Kia’s mum, Rachel, explains how invaluable Alexander Devine Children’s Hospice Service has been in caring for Kia and supporting the family especially through the current times.
Jude and his mother

Barnaby

Shortly after Barnaby was born in January 2008, Barnaby’s parents were given the devastating news that the healthy baby they expected had a severe and rare brain disorder called Lissencephaly. This is his story.
Jude and his mother

Aayushi

Aayushi has a progressive neurological disorder. Her condition sadly worsened soon after lockdown and her parents were worried that she may not make it to her 18th birthday in May.

Jude and his mother

Jessica

Jessica’s parents were told that she might not live past her toddler years, so have devoted themselves to providing her with the highest quality of life and giving Jessica the chance to live her life to the full.

Jude and his mother

Harry

Four year old Harry is a happy little boy who loves to read books, zoom around in his wizzybug car and play with his sisters. But his mum Jenny shares how his life is very different to other children his age. 

Jude and his mother

Marcus

Like most boys his age, Marcus loves playing computer games, playing in the park or with his beloved cat Pebbles. But Marcus’s life is sadly anything but ordinary. He was diagnosed late with Duchenne Muscular Dystrophy, a rare progressive muscle wasting disease.

Jude and his mother

Aaron

18 year old Aaron describes himself as “smart and creative” and always striving “to achieve a positive attitude towards life”. At the age of two he was diagnosed with a rare muscular dystrophy, which causes him to have significant muscle weakness that is deteriorating over time. 

Help us to support more incredible families like these

Our services are free to every family that needs them but we need your help to continue to support these families and reach out to more that need us.

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Shades on and chilling in our hydrotherapy pool - how super cool is Pippa?! 😎

Happy Friday everyone ☀️

#FridayFeeling #lifeatourhospice
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Our gardening club volunteers took delivery of a very special gift this month - a fantastic John Deere sit on mower, which was very generously donated to us by Farol Ltd.

Matt Vellacott, Managing Director at Farol, told us "we are very pleased and proud to help such a worthy cause.”

The new mower was delivered by Farol Twyford's Manager, Barry Sharp. He kindly spent the morning with our volunteers giving them a tutorial on looking after it and showing them how to use it.

Children and families love using the outside space at our beautiful hospice and the new mower will make it so much easier to maintain our grounds for them to enjoy.

Thank you Matt, Barry and all at Farol for your wonderful and generous donation, it really will make a world of difference.
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Well done to these Spartan heroes! 💪

We are so proud of the team from OpenText office in Reading who took on the mighty Spartan Obstacle Race in Henley earlier this month.

For those unfamiliar with Spartan races, they are obstacle courses that test speed, strength and endurance. The OpenText team had to conquer 20 off-road obstacles, including climbing walls, crawling under wire, traversing monkey bars, spear throws and of course lots of mud!

An amazing challenge and they managed to raise over £725! 👏
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Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.