Family stories

Meet some of the extraordinary children and families that we support

Jude and his mother

Aidan

Five year old Aidan was born with a rare condition called cystic hygroma. His condition requires daily medical management and affects his breathing, eating and speech.

Jude and his mother

Keanu

Shortly after twin boys, Keanu and Bodhi were born,  joy quickly turned to devastation when Keanu fell ill with meningitis, leading to severe swelling in his brain. His family have had to come to terms with his illness and life-long care needs.

Jude and his mother

Talia

Four year old Talia was born with a number of serious medical conditions. She needs 24/7 care and Alexander’s Care Team gives her family the vital support they need to cope with every day life.

Jude and his mother

Jude

Here his family share their story on coming to terms with Jude’s condition and how support from Alexander Devine Children’s Hospice Service is helping them cope with everyday life.
Riley and Stanley

Riley & Stanley

Shailza, the boys mother, shares some insight into life with her boys and the invaluable support she gets from Alexander Devine Children’s Hospice Service.
Anna Rose

Anna Rose

Anna’s mum, Kay speaks of the vital support the Alexander Care Team gave to her and her family in helping to cope with the impact of Anna’s condition and loss of her beautiful daughter.
Jude and his mother

Kia

Kia’s mum, Rachel, explains how invaluable Alexander Devine Children’s Hospice Service has been in caring for Kia and supporting the family especially through the current times.
Jude and his mother

Barnaby

Shortly after Barnaby was born in January 2008, Barnaby’s parents were given the devastating news that the healthy baby they expected had a severe and rare brain disorder called Lissencephaly. This is his story.
Jude and his mother

Aayushi

Aayushi has a progressive neurological disorder. Her condition sadly worsened soon after lockdown and her parents were worried that she may not make it to her 18th birthday in May.

Jude and his mother

Jessica

Jessica’s parents were told that she might not live past her toddler years, so have devoted themselves to providing her with the highest quality of life and giving Jessica the chance to live her life to the full.

Jude and his mother

Harry

Four year old Harry is a happy little boy who loves to read books, zoom around in his wizzybug car and play with his sisters. But his mum Jenny shares how his life is very different to other children his age. 

Jude and his mother

Marcus

Like most boys his age, Marcus loves playing computer games, playing in the park or with his beloved cat Pebbles. But Marcus’s life is sadly anything but ordinary. He was diagnosed late with Duchenne Muscular Dystrophy, a rare progressive muscle wasting disease.

Jude and his mother

Aaron

18 year old Aaron describes himself as “smart and creative” and always striving “to achieve a positive attitude towards life”. At the age of two he was diagnosed with a rare muscular dystrophy, which causes him to have significant muscle weakness that is deteriorating over time. 

Jude and his mother

Habibah

Habibah is a wonderful young lady who always fills our hospice with delicious baking smells and laughter as her two favourite things to do during her visits to the hospice is baking and pranking our Alexander’s Nurses! 

Help us to support more incredible families like these

Our services are free to every family that needs them but we need your help to continue to support these families and reach out to more that need us.

Alexander Devine on Facebook

Last week we had the pleasure of welcoming the Mayor of the Royal Borough of Windsor & Maidenhead, Cllr Christine Bateson, to our children’s hospice in Maidenhead.

It was a wonderful opportunity to show her our amazing state-of-the-art facilities and talk about the vital support we give to local children and their families, all made possible by donations and fundraising.

There are many misconceptions about what children’s hospice care is all about. Not many people understand the all-encompassing care that children’s hospice services like ours provide to children with life-limiting and life-threatening conditions, and their families. As well as the specialist clinical care, our holistic and bespoke approach aims to provide the best possible support for each child and family. This includes support such as much-needed respite, specialist play for children and their siblings, symptom management, family support services, end of life care and bereavement support. As well as at our children’s hospice in Maidenhead, Alexander’s Care Team provides support in the family home and the community, including hospitals and schools.

With facilities at our hospice such as a hydrotherapy pool, sensory room and accessible playground, we offer opportunities for children and their siblings to experience fun, joy and adventures, and help families make precious memories for as long as they have. For some of these children and their families, we will support them for many years, for others it may be a shorter period of time.

During the visit, our CEO Fiona introduced the mayor to our some of our wonderful volunteers and members of Alexander’s Care Team. However, we think it was Thomas and Keanu’s big smiles that definitely proved to be the highlight of the visit!

#royalboroughofwindsorandmaidenhead #childrenshospicecare #specialistcare #localcharity #lifeatourhospice
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We were very grateful to receive a donation of amazing mental health awareness self-care packages from Charlotte, founder of a lovely local small business called MindFill. They work with a range of clients to curate beautiful and bespoke branded care packages to help with employee wellness.

Thank you for thinking of us, what a lovely treat!
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Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.