Meet some of the extraordinary children and families that we support
Aidan was born with a rare condition called cystic hygroma. His condition requires daily medical management and affects his breathing, eating and speech.
Shortly after twin boys, Keanu and Bodhi were born, joy quickly turned to devastation when Keanu fell ill with meningitis, leading to severe swelling in his brain. His family have had to come to terms with his illness and life-long care needs.
Talia was born with a number of serious medical conditions. She needs 24/7 care and Alexander’s Care Team gives her family the vital support they need to cope with every day life.
Aaron describes himself as “smart and creative” and always striving “to achieve a positive attitude towards life”. At the age of two he was diagnosed with a rare muscular dystrophy, which causes him to have significant muscle weakness that is deteriorating over time.
Habibah is a wonderful young lady who always fills our hospice with delicious baking smells and laughter as her two favourite things to do during her visits to the hospice is baking and pranking our Alexander’s Nurses!
Pippa has complex health needs including severe epilepsy and feeding difficulties. She needs round-the-clock care and Pippa’s mum, Danielle, talks about the vital support Alexander Devine gives her family to help them cope.
Here his family share their story on coming to terms with Jude’s condition and how support from Alexander Devine helped them cope with everyday life.
Riley & Stanley
Kia’s mum, Rachel, explains how invaluable Alexander Devine Children’s Hospice Service has been in caring for Kia and supporting the family.
Aayushi has a progressive neurological disorder. Her condition sadly worsened soon after lockdown and her parents were worried that she may not make it to her 18th birthday in May.
Jessica’s parents were told by doctors that she might not live past her toddler years and so they devoted themselves to providing her with the highest quality of life and making sure Jessica had the chance to live her life to the full.
Four year old Harry is a happy little boy who loves to read books, zoom around in his wizzybug car and play with his sisters. But his mum Jenny shares how his life is very different to other children his age.
Like most boys his age, Marcus loves playing computer games, playing in the park or with his beloved cat Pebbles. But Marcus’s life is sadly anything but ordinary. He was diagnosed late with Duchenne Muscular Dystrophy, a rare progressive muscle wasting disease.
Help us to support more incredible families like theseOur services are free to every family that needs them but we need your help to continue to support these families and reach out to more that need us.
Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.