Family stories

Meet some of the extraordinary children and families that we support

Jude and his mother

Aidan

Five year old Aidan was born with a rare condition called cystic hygroma. His condition requires daily medical management and affects his breathing, eating and speech.

Jude and his mother

Keanu

Shortly after twin boys, Keanu and Bodhi were born,  joy quickly turned to devastation when Keanu fell ill with meningitis, leading to severe swelling in his brain. His family have had to come to terms with his illness and life-long care needs.

Jude and his mother

Talia

Four year old Talia was born with a number of serious medical conditions. She needs 24/7 care and Alexander’s Care Team gives her family the vital support they need to cope with every day life.

Jude and his mother

Jude

Here his family share their story on coming to terms with Jude’s condition and how support from Alexander Devine Children’s Hospice Service is helping them cope with everyday life.
Riley and Stanley

Riley & Stanley

Shailza, the boys mother, shares some insight into life with her boys and the invaluable support she gets from Alexander Devine Children’s Hospice Service.
Anna Rose

Anna Rose

Anna’s mum, Kay speaks of the vital support the Alexander Care Team gave to her and her family in helping to cope with the impact of Anna’s condition and loss of her beautiful daughter.
Jude and his mother

Kia

Kia’s mum, Rachel, explains how invaluable Alexander Devine Children’s Hospice Service has been in caring for Kia and supporting the family especially through the current times.
Jude and his mother

Barnaby

Shortly after Barnaby was born in January 2008, Barnaby’s parents were given the devastating news that the healthy baby they expected had a severe and rare brain disorder called Lissencephaly. This is his story.
Jude and his mother

Aayushi

Aayushi has a progressive neurological disorder. Her condition sadly worsened soon after lockdown and her parents were worried that she may not make it to her 18th birthday in May.

Jude and his mother

Jessica

Jessica’s parents were told by doctors that she might not live past her toddler years and so they devoted themselves to providing her with the highest quality of life and making sure Jessica had the chance to live her life to the full.

Jude and his mother

Harry

Four year old Harry is a happy little boy who loves to read books, zoom around in his wizzybug car and play with his sisters. But his mum Jenny shares how his life is very different to other children his age. 

Jude and his mother

Marcus

Like most boys his age, Marcus loves playing computer games, playing in the park or with his beloved cat Pebbles. But Marcus’s life is sadly anything but ordinary. He was diagnosed late with Duchenne Muscular Dystrophy, a rare progressive muscle wasting disease.

Jude and his mother

Aaron

18 year old Aaron describes himself as “smart and creative” and always striving “to achieve a positive attitude towards life”. At the age of two he was diagnosed with a rare muscular dystrophy, which causes him to have significant muscle weakness that is deteriorating over time. 

Jude and his mother

Habibah

Habibah is a wonderful young lady who always fills our hospice with delicious baking smells and laughter as her two favourite things to do during her visits to the hospice is baking and pranking our Alexander’s Nurses! 

Help us to support more incredible families like these

Our services are free to every family that needs them but we need your help to continue to support these families and reach out to more that need us.

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Playtime just got more magical at our hospice!✨

Thank you so much to Lifelites for their latest donation of assistive and inclusive technology to help enrich the lives of the children and young people that we support.

Today Lifelites has been training members of Alexander’s Care Team on how to use all the new equipment and toys including Eyegaze which helps children with limited movement or restricted speech communicate and take control for themselves, using just the movement of their eyes. With most of the equipment easily portable, it means there are no limits to where and when we can play!

It was wonderful to be joined by some of our families to celebrate the donation of this new technology and, of course, have a play!

#lifeatourhospice #childrenshospicecare #magicalmoments #assistivetechnology
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We are so grateful to the National Lottery Awards for helping to fund the important development of our Family Support programme.

The increased need to develop our Family Support programme has been driven by an increasing number of children with complex needs and a rising number of bereaved families. Thanks to National Lottery Awards’ generous donation of £9,250, we are able to widen the support we can give families including the recruitment of our Family Support Worker, parent group meetings and special events such as our remembrance days.

The National Lottery Community Fund
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📣Please join us in giving our amazing London marathon runners a big cheer! 🙌

Tracey, James and Fraser - we are so proud of you and wish you the best of luck for today.

Go #TeamDevine!

#fundraisingheros #marathonchallenge #londonmarathon2022
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Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.