Family stories
Meet some of the extraordinary children and families that we support
Aidan
Five year old Aidan was born with a rare condition called cystic hygroma. His condition requires daily medical management and affects his breathing, eating and speech.
Keanu
Shortly after twin boys, Keanu and Bodhi were born, joy quickly turned to devastation when Keanu fell ill with meningitis, leading to severe swelling in his brain. His family have had to come to terms with his illness and life-long care needs.
Talia
Four year old Talia was born with a number of serious medical conditions. She needs 24/7 care and Alexander’s Care Team gives her family the vital support they need to cope with every day life.
Jude
Riley & Stanley
Anna Rose
Kia
Barnaby
Aayushi
Aayushi has a progressive neurological disorder. Her condition sadly worsened soon after lockdown and her parents were worried that she may not make it to her 18th birthday in May.
Jessica
Jessica’s parents were told that she might not live past her toddler years, so have devoted themselves to providing her with the highest quality of life and giving Jessica the chance to live her life to the full.
Harry
Four year old Harry is a happy little boy who loves to read books, zoom around in his wizzybug car and play with his sisters. But his mum Jenny shares how his life is very different to other children his age.
Marcus
Like most boys his age, Marcus loves playing computer games, playing in the park or with his beloved cat Pebbles. But Marcus’s life is sadly anything but ordinary. He was diagnosed late with Duchenne Muscular Dystrophy, a rare progressive muscle wasting disease.
Aaron
18 year old Aaron describes himself as “smart and creative” and always striving “to achieve a positive attitude towards life”. At the age of two he was diagnosed with a rare muscular dystrophy, which causes him to have significant muscle weakness that is deteriorating over time.
Habibah
Habibah is a wonderful young lady who always fills our hospice with delicious baking smells and laughter as her two favourite things to do during her visits to the hospice is baking and pranking our Alexander’s Nurses!
Help us to support more incredible families like these
Our services are free to every family that needs them but we need your help to continue to support these families and reach out to more that need us.Alexander Devine on Facebook
Are you a nurse or carer interested in working in children's palliative care?
Come along to our Careers Morning on Saturday 1st October at our hospice in Maidenhead to find out about the varied, exciting, and rewarding roles we have available.
This event is aimed at Band 4 Nurse Associates, Band 5 and 6 Nurses, Band 3 and 4 Carers, and Nursery Nurses.
To book your place email ameliap@alexanderdevine.org
alexanderdevine.org/2022/08/careers-morning-for-nurses-and-carers-1st-october/
#childrenshospicecare #nursingjobs #palliativecare #nurserynurse #SpecialPlaceToWork #BerkshireJobs #carerjobs #childrenshospice #childrensnurse
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When this happens, it's usually because the owner only shared it with a small group of people or changed who can see it, or it's been deleted.Last week we had the pleasure of welcoming the Mayor of the Royal Borough of Windsor & Maidenhead, Cllr Christine Bateson, to our children’s hospice in Maidenhead.
It was a wonderful opportunity to show her our amazing state-of-the-art facilities and talk about the vital support we give to local children and their families, all made possible by donations and fundraising.
There are many misconceptions about what children’s hospice care is all about. Not many people understand the all-encompassing care that children’s hospice services like ours provide to children with life-limiting and life-threatening conditions, and their families. As well as the specialist clinical care, our holistic and bespoke approach aims to provide the best possible support for each child and family. This includes support such as much-needed respite, specialist play for children and their siblings, symptom management, family support services, end of life care and bereavement support. As well as at our children’s hospice in Maidenhead, Alexander’s Care Team provides support in the family home and the community, including hospitals and schools.
With facilities at our hospice such as a hydrotherapy pool, sensory room and accessible playground, we offer opportunities for children and their siblings to experience fun, joy and adventures, and help families make precious memories for as long as they have. For some of these children and their families, we will support them for many years, for others it may be a shorter period of time.
During the visit, our CEO Fiona introduced the mayor to our some of our wonderful volunteers and members of Alexander’s Care Team. However, we think it was Thomas and Keanu’s big smiles that definitely proved to be the highlight of the visit!
#royalboroughofwindsorandmaidenhead #childrenshospicecare #specialistcare #localcharity #lifeatourhospice
We were very grateful to receive a donation of amazing mental health awareness self-care packages from Charlotte, founder of a lovely local small business called MindFill. They work with a range of clients to curate beautiful and bespoke branded care packages to help with employee wellness.
Thank you for thinking of us, what a lovely treat!
Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.