Family stories

Meet some of the families that we support

Jude and his mother

Jude

Here his family share their story on coming to terms with Jude’s condition and how support from Alexander Devine Children’s Hospice Service is helping them cope with everyday life.
Riley and Stanley

Riley & Stanley

Shailza, the boys mother, shares some insight into life with her boys and the invaluable support she gets from Alexander Devine Children’s Hospice Service.
Anna Rose

Anna Rose

Anna’s mum, Kay speaks of the vital support the Alexander Care Team gave to her and her family in helping to cope with the impact of Anna’s condition and loss of her beautiful daughter.
Jude and his mother

Kia

Kia’s mum, Rachel, explains how invaluable Alexander Devine Children’s Hospice Service has been in caring for Kia and supporting the family especially through the current times.
Jude and his mother

Barnaby

Shortly after Barnaby was born in January 2008, Barnaby’s parents were given the devastating news that the healthy baby they expected had a severe and rare brain disorder called Lissencephaly. This is his story.
Jude and his mother

Aayushi

Aayushi has a progressive neurological disorder. Her condition sadly worsened soon after lockdown and her parents were worried that she may not make it to her 18th birthday in May.
Jude and his mother

Jessica

Jessica’s parents were told that she might not live past her toddler years, so have devoted themselves to providing her with the highest quality of life and giving Jessica the chance to live her life to the full.

Jude and his mother

Harry

Four year old Harry is a happy little boy who loves to read books, zoom around in his wizzybug car and play with his sisters. But his mum Jenny shares how his life is very different to other children his age. 

Jude and his mother

Marcus

Like most boys his age, Marcus loves playing computer games, playing in the park or with his beloved cat Pebbles. But Marcus’s life is sadly anything but ordinary. He was diagnosed late with Duchenne Muscular Dystrophy, a rare progressive muscle wasting disease.

Jude and his mother

Aidan

Five year old Aidan was born with a rare condition called cystic hygroma. His condition requires daily medical management and affects his breathing, eating and speech.

Help us to support more incredible families like these

Our services are free to every family that needs them but we need your help to continue to support these families and reach out to more that need us.

Alexander Devine on Facebook

This December we want to share with you some of the different ways we bring comfort and joy to the children and families that we support, all thanks to your support.

It's Day 1 and look who's behind today's door...

Life for Harry is very different to most children his age. 5 year old Harry was born with a rare neurological condition called Moebius syndrome. It means he can’t smile, blink or move his eyes. He is also very weak and can’t sit up or walk. He struggles to swallow so is fed through a peg tube.

Harry’s family are determined to make sure Harry has every opportunity to experience things other children his age do. And visits to our hospice do just that. As well as an opportunity for much-needed respite for his parents, it is also the chance for Harry to have fun, whether that is splashing in the pool, playing in the playground or enjoying music therapy.

You can help continue to bring comfort and joy to children like Harry by donating to our Christmas Appeal ➡www.alexanderdevine.org/christmas

#ComfortandJoy #DevineChristmasAppeal #WatchShareDonate
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"Our Christmas wish is that our Mum can keep doing the best job in the world and can keep looking after the children that need her. Please help our mum" - Eden and Theo

This festive season, Alexander’s Nurses like Abi, Eden and Theo's mum, will be making magical moments happen because of people like you.

Will you give what you can to help them bring comfort and joy to seriously-ill local children and their families this Christmas?

Watch our Christmas appeal and find out how you can help here ⬇️
️www.alexanderdevine.org/christmas

#ComfortandJoy #DevineChristmasAppeal #WatchShareDonate
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It's nearly time Windsor!🎅🏃

Thank you so much to everyone that has signed up, we can't wait to see you all tomorrow!

➡ Don't forget you can save time tomorrow by collecting your Santa suit today! Head to Horler and Associates Limited today on Dedworth road in Windsor

➡Missed our deadline for signing up?
Don't worry you can come along to Batchelors Acre and register between 7.45am and 8.15am. £25 per adult and £12 for children.

Good luck Dashers!

#SantaDash #devinesantadash #BerkshireSantaDash #windsorsantadash
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Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.