Habibah

“To be told that your child has an incurable disease is the most devastating news any parent can receive. We are extremely lucky to have an amazing network of support through Alexander Devine as no family should have to suffer alone.”

Your supports means that we can offer the vital support that families like Habibah’s need.

Here Imran, Habibah’s father, sharesr their story and the vital support our children’s hospice gives to his family:

“My daughter Habibah is 14 years old and the eldest to her two siblings. In 2008 at the age of nine months old Habibah was diagnosed with Merosin Deficient Muscular Dystrophy, a progressive muscle wasting disease that has no cure.

To be told that your child has an incurable disease is the most devastating news any parent can receive. We are extremely lucky to have an amazing network of support through Alexander Devine as no family should have to suffer alone.

In  2016 I was then diagnosed with a life-changing condition called seropositive rheumatoid arthritis and I take chemotherapy medication to manage my condition. When something life-changing rears its head, you can either sink, stay afloat or swim; we as a family chose the latter. 

I have learnt to adapt to the unpredictable nature of my condition as well as Habibah’s health and learnt the importance of making the most of every good day.

I was working as a lecturer/ research scientist when Habibah was younger, however since Habibah has got older and her care needs have changed I’ve had to make a career change and became a self employed tutor so I can work around Habibah’s needs. 

I just can’t thank Alexander Devine for everything they are doing for us – the care they provide is beyond exceptional. Its hospice provides an enriched environment for our daughter as well as her siblings. It’s a beautiful place full of love and warmth and friendly staff who make you feel at home. It’s really amazing that we have facilities and services like this available for families like us with children who have a life-limiting illness.”

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This Father’s Day, please help us give families Imran and Habibah’s the vital support they need.

Donate now

Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and into surrounding counties. Anyone can make a referral to Alexander Devine Children’s Hospice Service and if you think your child may be eligible for our services, please do get in touch.

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🌴Come join the party🍹

This October, our incredible friends at Nirvana Spa are hosting an ALL INCLUSIVE Caribbean Party with 100% of all ticket sales benefitting Alexander Devine!

This spectacular event promises to be an occasion to remember with reggae anthems, a carnival atmosphere and bottomless rum punch! You will feel like you've been transported to Caribbean shores.

For more details and to book your tickets 👇
nirvanaspa.co.uk/caribbean-party/
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It’s bright, colourful, fun, noisy and we can play with it anywhere we like in the hospice! 💙💛

We absolutely love our new mobile sensory unit, generously donated by The Fence Club.

#AmazingSupporters #LifeAtOurHospice
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If you are shopping in your local Tesco store in the next few months, you could help us win up to £3,000!

We’re thrilled to be in the customer vote for a Tesco #CommunityGrant during July, August and September.

Every time you shop, please ask for a blue token at the till and pop it in our box. The more tokens we get, the bigger the donations we receive so don't forget to also ell your friends and family about how they can support us.

The other great news is that there are plenty of stores around Maidenhead and Reading that you can vote in. We've listed some of these below:
💙Bath Road, Taplow
💛Burnham Road, Slough
💙High Street, Burnham
💛Bath Road, Maidenhead
💙Furze Platt Road, Maidenhead
💛Church Street, Caversham
💙Buckingham Drive, Emmer Green
💛Shinfield Road, Reading
💙Silverdale Road, Lower Earley
💛Napier Road, Reading
💙Bath Road, Southcote Service Station, Reading
💛Market Place, Reading
💙Oxford Road, Reading
💛Crown Street, Reading
💙Whitely Street Reading
💛London Road, Reading
💙Portman Road, Reading
💛Knowsley Road, Tilehurst
💙Reading Road, Burghfield Common
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Registered with Fundraising Regulator
Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.