“To be told that your child has an incurable disease is the most devastating news any parent can receive. We are extremely lucky to have an amazing network of support through Alexander Devine as no family should have to suffer alone.”

Your supports means that we can offer the vital support that families like Habibah’s need.

Here Imran, Habibah’s father, sharesr their story and the vital support our children’s hospice gives to his family:

“My daughter Habibah is 14 years old and the eldest to her two siblings. In 2008 at the age of nine months old Habibah was diagnosed with Merosin Deficient Muscular Dystrophy, a progressive muscle wasting disease that has no cure.

To be told that your child has an incurable disease is the most devastating news any parent can receive. We are extremely lucky to have an amazing network of support through Alexander Devine as no family should have to suffer alone.

In  2016 I was then diagnosed with a life-changing condition called seropositive rheumatoid arthritis and I take chemotherapy medication to manage my condition. When something life-changing rears its head, you can either sink, stay afloat or swim; we as a family chose the latter. 

I have learnt to adapt to the unpredictable nature of my condition as well as Habibah’s health and learnt the importance of making the most of every good day.

I was working as a lecturer/ research scientist when Habibah was younger, however since Habibah has got older and her care needs have changed I’ve had to make a career change and became a self employed tutor so I can work around Habibah’s needs. 

I just can’t thank Alexander Devine for everything they are doing for us – the care they provide is beyond exceptional. Its hospice provides an enriched environment for our daughter as well as her siblings. It’s a beautiful place full of love and warmth and friendly staff who make you feel at home. It’s really amazing that we have facilities and services like this available for families like us with children who have a life-limiting illness.”


Help us continue to be there for families like Habibah’s. By making a donation today, large or small, you will be providing specialist care and vital support for families who care for children with life-limiting and life-threatening conditions.

Donate now

Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and into surrounding counties. If you think your child may be eligible for our services, please do get in touch.

Alexander Devine on Facebook

Remember our very special Christmas gift from Volvo? 🚗🎁

It’s a gift that really has been making a huge difference to us at Alexander Devine, especially in helping us provide additional support for families like Huzaifah's.

Huzaifah, who is not yet two years old, up until earlier this year had spent just 7 weeks of his life out of hospital. Our team have been supporting the family in trying to keep him safe at home as much as possible, and now we can also help the family with taking him to his hospital appointments for vital treatment.

Using the car meant our Alexander's Nurses and Carers could safely transport Huzaifah along with his wheelchair, additional oxygen cylinders, suction machine and the extra team members we need to keep him safe during the journey.

Thank you Volvo for helping us make even more of a difference to children and families that we support.

Volvo Car UK
... See MoreSee Less

View on Facebook

…and relax!

With its mesmerising lights and rainbow of colours, our sensory room is a wonderfully calm environment for the babies, children and young people that we support to explore.

After a busy morning splashing in the pool, getting messy in the creative zone or playing outside in the gardens, it’s the perfect place to unwind (for Alexander’s Nurses and Carers too!)

#LifeAtOurHospice #ChildrensHospiceCare #SensoryPlay #MagicalMoments
... See MoreSee Less

View on Facebook

Glitz, glamour, delicious food, fabulous entertainment, music and dancing – all wrapped up into one sparkling evening!

For this year's Heaven Sent Ball on Friday 12th May, we are heading to the stunning De Vere Wokefield Estate, near Reading.

For more information and to book your tickets, visit: alexanderdevine.org/heavensentball

Blue Peak Accounting href="https://facebook.com/590287127648696">#fundraisingball #heavensentball Blue Peak Accounting
... See MoreSee Less

View on Facebook
Inspected and rated Good by Care Quality commission
Registered with Fundraising Regulator
Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.