Habibah

“To be told that your child has an incurable disease is the most devastating news any parent can receive. We are extremely lucky to have an amazing network of support through Alexander Devine as no family should have to suffer alone.”

Your supports means that we can offer the vital support that families like Habibah’s need.

Here Imran, Habibah’s father, sharesr their story and the vital support our children’s hospice gives to his family:

“My daughter Habibah is 14 years old and the eldest to her two siblings. In 2008 at the age of nine months old Habibah was diagnosed with Merosin Deficient Muscular Dystrophy, a progressive muscle wasting disease that has no cure.

To be told that your child has an incurable disease is the most devastating news any parent can receive. We are extremely lucky to have an amazing network of support through Alexander Devine as no family should have to suffer alone.

In  2016 I was then diagnosed with a life-changing condition called seropositive rheumatoid arthritis and I take chemotherapy medication to manage my condition. When something life-changing rears its head, you can either sink, stay afloat or swim; we as a family chose the latter. 

I have learnt to adapt to the unpredictable nature of my condition as well as Habibah’s health and learnt the importance of making the most of every good day.

I was working as a lecturer/ research scientist when Habibah was younger, however since Habibah has got older and her care needs have changed I’ve had to make a career change and became a self employed tutor so I can work around Habibah’s needs. 

I just can’t thank Alexander Devine for everything they are doing for us – the care they provide is beyond exceptional. Its hospice provides an enriched environment for our daughter as well as her siblings. It’s a beautiful place full of love and warmth and friendly staff who make you feel at home. It’s really amazing that we have facilities and services like this available for families like us with children who have a life-limiting illness.”

————————————————————–

This Father’s Day, please help us give families Imran and Habibah’s the vital support they need.

Donate now

Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and into surrounding counties. If you think your child may be eligible for our services, please do get in touch.

Alexander Devine on Facebook

We’re delighted to have received a grant from Marks and Spencer as part of their Gifts that Give campaign this Christmas. This wonderful donation will help fund lots of festive fun and activities for children and their siblings we support.

The grant was all thanks to M&S teaming up with Neighbourly Foundation to give donations to 1,000 small charities and community groups in the UK and Ireland.
... See MoreSee Less

View on Facebook

2 days ago

Alexander Devine Children's Hospice Service

Alexander Devine Children's Hospice Service's cover photo ... See MoreSee Less

View on Facebook

Spread some Christmas kindness ⭐️

We were privileged to provide end of life care for beautiful baby Joshua and his family at our children’s hospice.

Joshua was just 7 weeks old when he sadly died.

For our Christmas appeal this year his parents, Emma and Peter Lowe, bravely share his story. They hope in doing so that they can “spread kindness to other families who will face tragedy like us. We want to make sure these families are not alone and will have the invaluable support given to us by Alexander Devine.”

Your kindness this Christmas can help us be there for more precious children like Joshua: alexanderdevine.enthuse.com/cf/christmasappeal2022

#ChristmasKindness #DevineChristmasAppeal #WatchShareDonate
... See MoreSee Less

View on Facebook
Inspected and rated Good by Care Quality commission
Registered with Fundraising Regulator
Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.