Talia

“Alexander Devine stepped in and made such an unforgettable impact on our lives. We count our blessings for the continuous support they give us. They’ve enabled us to watch Talia enjoy a new, safe and exciting environment at their hospice, given us respite from her medical demands and most importantly backed us as a family through every step of our journey”

Gemma, Talia’s mum

Four year old Talia was born in October 2017 with a number of serious medical conditions. Soon after she was born, doctors had to tell her parents the devastating news that they were unsure how long she would survive.

Talia spent her first few days undergoing a ‘cooling process’ to slow brain damage. In the following 12 months, this incredible little girl fought off bacterial meningitis, was diagnosed with cerebral palsy, caught bronchiolitis, underwent heart surgery, diagnosed with CHARGE syndrome and vocal palsy, underwent a further operation to be given a tracheostomy and was pronounced profoundly deaf.

After a whole year of being in hospital, Talia was finally discharged and able to go home. But with ongoing complex medical conditions, she needed 24/7 care. Alexander’s Care Team stepped in to give the family the vital support they need to cope with every day life and continue to provide specialist nursing care, opportunities for Talia to do things other children her age would do and give Talia’s parents the much-needed respite they deserve.

Watch Talia’s story…

Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and into surrounding counties. If you think your child may be eligible for our services, please do get in touch.

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Playtime just got more magical at our hospice!✨

Thank you so much to Lifelites for their latest donation of assistive and inclusive technology to help enrich the lives of the children and young people that we support.

Today Lifelites has been training members of Alexander’s Care Team on how to use all the new equipment and toys including Eyegaze which helps children with limited movement or restricted speech communicate and take control for themselves, using just the movement of their eyes. With most of the equipment easily portable, it means there are no limits to where and when we can play!

It was wonderful to be joined by some of our families to celebrate the donation of this new technology and, of course, have a play!

#lifeatourhospice #childrenshospicecare #magicalmoments #assistivetechnology
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We are so grateful to the National Lottery Awards for helping to fund the important development of our Family Support programme.

The increased need to develop our Family Support programme has been driven by an increasing number of children with complex needs and a rising number of bereaved families. Thanks to National Lottery Awards’ generous donation of £9,250, we are able to widen the support we can give families including the recruitment of our Family Support Worker, parent group meetings and special events such as our remembrance days.

The National Lottery Community Fund
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📣Please join us in giving our amazing London marathon runners a big cheer! 🙌

Tracey, James and Fraser - we are so proud of you and wish you the best of luck for today.

Go #TeamDevine!

#fundraisingheros #marathonchallenge #londonmarathon2022
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Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.