“Alexander Devine stepped in and made such an unforgettable impact on our lives. We count our blessings for the continuous support they give us. They’ve enabled us to watch Talia enjoy a new, safe and exciting environment at their hospice, given us respite from her medical demands and most importantly backed us as a family through every step of our journey”
Gemma, Talia’s mum
Four year old Talia was born in October 2017 with a number of serious medical conditions. Soon after she was born, doctors had to tell her parents the devastating news that they were unsure how long she would survive.
Talia spent her first few days undergoing a ‘cooling process’ to slow brain damage. In the following 12 months, this incredible little girl fought off bacterial meningitis, was diagnosed with cerebral palsy, caught bronchiolitis, underwent heart surgery, diagnosed with CHARGE syndrome and vocal palsy, underwent a further operation to be given a tracheostomy and was pronounced profoundly deaf.
After a whole year of being in hospital, Talia was finally discharged and able to go home. But with ongoing complex medical conditions, she needed 24/7 care. Alexander’s Care Team stepped in to give the family the vital support they need to cope with every day life and continue to provide specialist nursing care, opportunities for Talia to do things other children her age would do and give Talia’s parents the much-needed respite they deserve.
Watch Talia’s story…
Need our help?
The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.
Our children’s hospice service covers the whole of Berkshire and into surrounding counties. Anyone can make a referral to Alexander Devine Children’s Hospice Service and if you think your child may be eligible for our services, please do get in touch.
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