Talia

“Alexander Devine stepped in and made such an unforgettable impact on our lives. We count our blessings for the continuous support they give us. They’ve enabled us to watch Talia enjoy a new, safe and exciting environment at their hospice, given us respite from her medical demands and most importantly backed us as a family through every step of our journey”

Gemma, Talia’s mum

Four year old Talia was born in October 2017 with a number of serious medical conditions. Soon after she was born, doctors had to tell her parents the devastating news that they were unsure how long she would survive.

Talia spent her first few days undergoing a ‘cooling process’ to slow brain damage. In the following 12 months, this incredible little girl fought off bacterial meningitis, was diagnosed with cerebral palsy, caught bronchiolitis, underwent heart surgery, diagnosed with CHARGE syndrome and vocal palsy, underwent a further operation to be given a tracheostomy and was pronounced profoundly deaf.

After a whole year of being in hospital, Talia was finally discharged and able to go home. But with ongoing complex medical conditions, she needed 24/7 care. Alexander’s Care Team stepped in to give the family the vital support they need to cope with every day life and continue to provide specialist nursing care, opportunities for Talia to do things other children her age would do and give Talia’s parents the much-needed respite they deserve.

Watch Talia’s story…

Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and into surrounding counties. Anyone can make a referral to Alexander Devine Children’s Hospice Service and if you think your child may be eligible for our services, please do get in touch.

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Shades on and chilling in our hydrotherapy pool - how super cool is Pippa?! 😎

Happy Friday everyone ☀️

#FridayFeeling #lifeatourhospice
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Our gardening club volunteers took delivery of a very special gift this month - a fantastic John Deere sit on mower, which was very generously donated to us by Farol Ltd.

Matt Vellacott, Managing Director at Farol, told us "we are very pleased and proud to help such a worthy cause.”

The new mower was delivered by Farol Twyford's Manager, Barry Sharp. He kindly spent the morning with our volunteers giving them a tutorial on looking after it and showing them how to use it.

Children and families love using the outside space at our beautiful hospice and the new mower will make it so much easier to maintain our grounds for them to enjoy.

Thank you Matt, Barry and all at Farol for your wonderful and generous donation, it really will make a world of difference.
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Well done to these Spartan heroes! 💪

We are so proud of the team from OpenText office in Reading who took on the mighty Spartan Obstacle Race in Henley earlier this month.

For those unfamiliar with Spartan races, they are obstacle courses that test speed, strength and endurance. The OpenText team had to conquer 20 off-road obstacles, including climbing walls, crawling under wire, traversing monkey bars, spear throws and of course lots of mud!

An amazing challenge and they managed to raise over £725! 👏
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Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.