Keanu

Alexander Devine opened up a whole new world of hope and relief that come what may I was not alone in managing Keanu’s needs, both in the short and long term. I would truly be at a loss as to how I would manage without their services”

Lisa, Keanu’s mum

Caring for a child with a life-limiting or life-threatening condition is 24/7 and taking a break is not always possible. But Alexander Devine is there for these parents to help make life a little easier and give them the support they need.

One of these mums is Lisa Youngblood from Maidenhead. In September 2020 she became a mum to her beautiful twin boys, Keanu and Bodhi. But joy quickly turned to devastation when Keanu fell ill shortly after he was born. Keanu sadly caught meningitis that lead to severe swelling in his brain.

Now 18 months old, Keanu’s ongoing complex medical condition means he needs lots of additional support. Alexander Devine is there to help the family as much as it can, providing much-needed respite, nursing care and specialist play for the boys.

For Lisa, the support she gets from Alexander Devine has given her hope and relief as she comes to terms with her son’s illness and life-long care needs:

“Alexander Devine has afforded me immense support, compassion and understanding. Their care covers myself as well as both my boys – we are seen as a unit which is one of the stand out qualities of their services. Until I was introduced to Alexander Devine I felt quite bereft and alone in coming to terms with my son’s illness and the life-long care needs that resulted.  

Alexander Devine opened up a whole new world of hope and relief that come what may I was not alone in managing Keanu’s needs, both in the short and long term. I would truly be at a loss as to how I would manage without their services. I feel overwhelming gratitude for the legacy that is Alexander Devine Children’s Hospice Service and all the care and hard work that so many provide to help families like mine, the management, the staff and the fundraisers.”

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This Mother’s Day, please help us give amazing mums like Lisa the much-needed break from caring that they need, some special #MumTime to take time for themselves.

Donate now

Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and into surrounding counties. If you think your child may be eligible for our services, please do get in touch.

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Playtime just got more magical at our hospice!✨

Thank you so much to Lifelites for their latest donation of assistive and inclusive technology to help enrich the lives of the children and young people that we support.

Today Lifelites has been training members of Alexander’s Care Team on how to use all the new equipment and toys including Eyegaze which helps children with limited movement or restricted speech communicate and take control for themselves, using just the movement of their eyes. With most of the equipment easily portable, it means there are no limits to where and when we can play!

It was wonderful to be joined by some of our families to celebrate the donation of this new technology and, of course, have a play!

#lifeatourhospice #childrenshospicecare #magicalmoments #assistivetechnology
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We are so grateful to the National Lottery Awards for helping to fund the important development of our Family Support programme.

The increased need to develop our Family Support programme has been driven by an increasing number of children with complex needs and a rising number of bereaved families. Thanks to National Lottery Awards’ generous donation of £9,250, we are able to widen the support we can give families including the recruitment of our Family Support Worker, parent group meetings and special events such as our remembrance days.

The National Lottery Community Fund
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📣Please join us in giving our amazing London marathon runners a big cheer! 🙌

Tracey, James and Fraser - we are so proud of you and wish you the best of luck for today.

Go #TeamDevine!

#fundraisingheros #marathonchallenge #londonmarathon2022
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Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.