Aayushi

Coronavirus and lockdown had severe implications for a lot of families caring for children with complex healthcare needs.

One of these families was Aayushi’s, who suffered from a progressive neurological disorder. Alexander Devine has supported their family for nearly ten years.

Shortly after lockdown started in March 2020, and whilst she was meant to be transitioning to adult services, Aayushi’s condition worsened and her family were worried that she would not make it to her 18th birthday.

Mum, ShamBhavi, told us how much it meant to have Alexander Care Team, which she calls her “Angels” to help them navigate this tough time and be a crucial lifeline to their family:

“My beautiful girl who was about to turn 18 in May 2020 , fell very ill in the April. We were devastated and it seemed that she would not be able to make her birthday. To complicate matters, lockdown had started and we were going through her transition to adult services too.

I don’t know what we would have done without having Alexander Devine’s nurses to help us. These angels helped to take so much of our stress away. Not only advising how to take care of Aayushi but working with Consultants, GP, Physios and pharmacies. So many things I was struggling with, but they helped in so many ways to resolve things. I am so grateful from the bottom of my heart and can’t thank them enough. They care with their heart and soul and make the ‘Devine’ difference in people’s lives.”

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Help us continue to be there for families like Aayushi’s. By making a donation today, large or small, you will be providing specialist care and vital support for families who care for children with life-limiting and life-threatening conditions.

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Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and into surrounding counties. If you think your child may be eligible for our services, please do get in touch.

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One of the greatest and most precious gifts our charity receives is time 💙💛We are fortunate to have 155 amazing volunteers who collectively donate around 2,000 hours of their time each year. Without their vital support, we would not be there for children and families that need us. This #VolunteersWeek we will be celebrating what inspires our volunteers to make their unique contributions to our charity, whether at the hospice or out in the community. If our volunteers inspire you to gift your time, you can learn more about volunteering with our charity here: www.alexanderdevine.org/volunteer#InspiringVolunteers #localcharity ... See MoreSee Less
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It was lovely to welcome Jon Davey, Community Champion from Tesco in Dedworth Road Windsor, to our children’s hospice last week with a very generous donation of books for our next children’s book sale. We are so grateful for the ongoing support that Jon and his team give to Alexander Devine. Their kindness makes such a difference to our charity 💙💛Tesco #CommunityChampion ... See MoreSee Less
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With 3 weeks until #ChildrensHospiceWeek, will you help us #RockTheBlue?!🙋‍♀️ Sign up to receive your #RockTheBlue fundraising pack💡 Plan your blue themed activity or challenge💙 Raise money and make a difference to local children with life- limiting and life-threatening conditions 👉 Visit www.alexanderdevine.org/rocktheblue or email our friendly fundraising team for help with your BLUE-ming brilliant ideas: fundraising@alexanderdevine.org #fundraisingfun #localcharity #childrenshospiceservice ... See MoreSee Less
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Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.