Aayushi

Coronavirus and lockdown has had severe implications for a lot of families caring for children with complex healthcare needs.

One of these families is Aayhushi’s. She is 18 years old and suffers from a progressive neurological disorder.

Shortly after lockdown started and whilst she was meant to be transitioning to adult services, Aayushi’s condition worsened and her family were worried that she would not make it to her big milestone birthday.

Mum, ShamBhavi, told us how much it meant to have Alexander Care Team, which she calls her “Angels” to help them navigate this tough time and be a crucial lifeline to their family.  Alexander Devine has supported their family for the past 7 years:

“My beautiful girl who was about to turn 18 in May fell very ill in April. We were devastated and it seemed that she would not be able to make her birthday. To complicate matters, lockdown had started and we were going through her transition to adult services too.

I don’t know what we would have done without having Alexander Devine’s nurses to help us. These angels helped to take so much of our stress away. Not only advising how to take care of Aayushi but working with Consultants, GP, Physios and pharmacies. So many things I was struggling with, but they helped in so many ways to resolve things. I am so grateful from the bottom of my heart and can’t thank them enough. They care with their heart and soul and make the ‘Devine’ difference in people’s lives.”

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This Children’s Hospice Week, help us to continue to support families like Aayushi’s. By making a donation today, large or small, you will help provide a lifeline for families who care for seriously ill children – now more than ever.

 

Donate now

Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and into surrounding counties. Anyone can make a referral to Alexander Devine Children’s Hospice Service and if you think your child may be eligible for our services, please do get in touch.

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Shades on and chilling in our hydrotherapy pool - how super cool is Pippa?! 😎

Happy Friday everyone ☀️

#FridayFeeling #lifeatourhospice
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Our gardening club volunteers took delivery of a very special gift this month - a fantastic John Deere sit on mower, which was very generously donated to us by Farol Ltd.

Matt Vellacott, Managing Director at Farol, told us "we are very pleased and proud to help such a worthy cause.”

The new mower was delivered by Farol Twyford's Manager, Barry Sharp. He kindly spent the morning with our volunteers giving them a tutorial on looking after it and showing them how to use it.

Children and families love using the outside space at our beautiful hospice and the new mower will make it so much easier to maintain our grounds for them to enjoy.

Thank you Matt, Barry and all at Farol for your wonderful and generous donation, it really will make a world of difference.
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Well done to these Spartan heroes! 💪

We are so proud of the team from OpenText office in Reading who took on the mighty Spartan Obstacle Race in Henley earlier this month.

For those unfamiliar with Spartan races, they are obstacle courses that test speed, strength and endurance. The OpenText team had to conquer 20 off-road obstacles, including climbing walls, crawling under wire, traversing monkey bars, spear throws and of course lots of mud!

An amazing challenge and they managed to raise over £725! 👏
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Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.