Alexander Devine helps BBC Lifeline Appeal demonstrate the power of music therapy

On Sunday 25 October, a young girl supported by Alexander Devine Children’s Hospice Service is one of several special children featuring in a BBC Lifeline Appeal for the national charity Jessie’s Fund, which has supported music therapy at Alexander Devine for the past three years.

Six year old Jessica has Leigh’s syndrome, a life-limiting neurological disorder that affects her mental and movement abilities. Her parents Vicky and Keith were told that she might not live past her toddler years, so have devoted themselves to providing her with the highest quality of life. Jessica is supported by Alexander Devine Children’s Hospice Service and through which she has been receiving music therapy for the past nine months.

The music therapy sessions have taught Vicky how to communicate with her daughter Jessica, and hear what she needs. The sessions are the highlight of Jessica’s life, bringing joy to the whole family, especially during lockdown. Vicky told us:

Jessica loves music and having music therapy gives her an opportunity to express herself. Alexander Devine’s music therapist, Anouska, provides her with choices of what instruments to play and she is able to get involved in turn taking and directing the tempo and rhythm of the music.

For this to have been offered during lockdown has been a slice of normality that has been lacking in so many parts of Jessica’s life. Having music therapy to look forward to each week has meant the world to Jessica as she musters as much energy as she can to put into her sessions.”

Alexander Devine’s music therapist, Anouska Henderson, said:

“For children like Jessica, music therapy gives an opportunity to be creative and be heard when verbal language is not always possible. It is a space where she can take her time to communicate, choose instruments and vocalise how she is feeling. The child is always at the heart of every session and they are in control of how the session runs. It is also so wonderful to be able to share these sessions with other family members.

Alexander Devine is a charity that relies nearly entirely on fundraising and donations to run its lifeline services. So we are appreciative of the funding support from Jessie’s Fund over the last three years. It has enabled us to run music sessions for children like Jessica, making such a difference to her life and helping her family create such precious memories.”

The ten minute programme on BBC TV will provide a unique opportunity to catch a glimpse of how powerful music can be for children who have complex needs. Whether an individual child is in music therapy, or a class in a special school is interacting in a specialist music session, music can open pathways to communication and learning.

Lesley Schatzberger, Jessie’s Fund Director says;

“Communication is one of the most basic needs of all humans: the children we work with struggle to communicate, and some have no means to express themselves at all.  Music is a powerful way in which they can connect with the world around them: on 25th October there’s a chance to witness moments of this on BBC TV.”

BBC Lifeline Appeal which will be aired at 14:05 on Sunday 25th October on BBC One, and again at 14:30 on Tuesday 27th October on BBC Two. The programme will also be available on iPlayer after the broadcast.

 

 

Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and the surrounding counties. Anyone can make a referral to Alexander Devine Children’s Hospice Service and if you think your child may be eligible for our services, please do get in touch.

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Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

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