Supporting families at the hardest of times

“We can’t make this time any less painful, but we can help ensure each family has the support they want and need”

Tamara is one of our Clinical Nurse Specialists at Alexander Devine. This Baby Loss Awareness Week she talks about the vital role she plays in supporting families at the hardest of times.

The loss of a pregnancy or infant is a very difficult subject for many parents, parents-to-be, and their families. They find themselves suddenly thrust onto a new path they never expected to be on. Everyone’s journey on this path is unique and Tamara and Alexander’s Care Team are there to give support when it is needed:

Alexander Devine often receives referrals from neonatal teams when babies have complex healthcare needs. We are skilled in providing compassionate care and support for the whole family from the first contact until after a child has died.

 

If an antenatal scan has picked up that a baby has a life-limiting condition, expectant parents can be referred to us. A joined-up approach is important so our Clinical Nurse Specialists meet with the obstetrician, midwives and hospice doctor to build a birth plan for the mother and advance care and symptom management plan for the baby once they are born.

 

Sadly, some of these babies pass away very soon after birth and we ensure they are comfortable to enable the parents to have precious time with their newborn baby. Being able to make special and lasting memories is so important and for many of these families we do what we can to facilitate special photo shoots and imprints of their hands and feet.

 

We also offer either the Dolphin Suite or the use of a cuddle cot, which enables the parents to take their baby home for a few days or spend time within the hospice with the support of the team. We help the families build memory boxes both during the pregnancy and after birth, and extend our support to siblings with specialist play and age-appropriate activities.

 

It’s such a rewarding part of my role as no matter how short a baby’s life is, to be able to offer support to the parents and family during such an incredibly sad time is such a privilege. We can’t make this time any less painful, but we can help ensure each family has the support they want and need and give them a dedicated and private space to be together.

Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and into surrounding counties. If you think your child may be eligible for our services, please do get in touch.

Alexander Devine on Facebook

We’re delighted to have received a grant from Marks and Spencer as part of their Gifts that Give campaign this Christmas. This wonderful donation will help fund lots of festive fun and activities for children and their siblings we support.

The grant was all thanks to M&S teaming up with Neighbourly Foundation to give donations to 1,000 small charities and community groups in the UK and Ireland.
... See MoreSee Less

View on Facebook

2 days ago

Alexander Devine Children's Hospice Service

Alexander Devine Children's Hospice Service's cover photo ... See MoreSee Less

View on Facebook

Spread some Christmas kindness ⭐️

We were privileged to provide end of life care for beautiful baby Joshua and his family at our children’s hospice.

Joshua was just 7 weeks old when he sadly died.

For our Christmas appeal this year his parents, Emma and Peter Lowe, bravely share his story. They hope in doing so that they can “spread kindness to other families who will face tragedy like us. We want to make sure these families are not alone and will have the invaluable support given to us by Alexander Devine.”

Your kindness this Christmas can help us be there for more precious children like Joshua: alexanderdevine.enthuse.com/cf/christmasappeal2022

#ChristmasKindness #DevineChristmasAppeal #WatchShareDonate
... See MoreSee Less

View on Facebook
Inspected and rated Good by Care Quality commission
Registered with Fundraising Regulator
Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.