Team Jude’s 100 marathon challenge

Mel and Dale Simkiss are walking the most difficult of paths knowing that they may one day lose their child.

In June 2018, the Simkiss family received the devastating news that their precious little boy was unlikely to live past his childhood. Jude, the youngest of four children, was born with a rare genetic disorder affecting his brain called Mitochondrial disease. He is unable to move other than slight rocking and will never walk or talk.

This Mitochondrial Disease Awareness Week, Jude’s father, Dale, along with six friends, are taking on a massive fundraising challenge to raise awareness and vital funds for the charities that offer his family vital support. Team Jude is currently undertaking 100 marathons in 100 days, which will culminate with Dale taking on the virtual London marathon on 4 October carrying a 16kg rucksack on his back, which is the equivalent weight of his son Jude.

Dale said:

“If you watch Coronation Street, you will be aware of the storyline of Oliver, his diagnosis of Mitchondrial disease and his parent’s anguish about turning his life support off.

 

My family live this reality, knowing that one day we may have to do the same.

 

My son Jude, who is nearly three, has Mitochondrial disease, a life-limiting and debilitating condition for which there is no cure or treatment. He is almost completely disabled and will never walk, talk, see or experience most of the things we all take for granted.”

Team Jude is raising money for Alexander Devine Children’s Hospice Service which supports the Simkiss family, along with Lily Foundation and Genetics Disorders UK. To support Team Jude in their marathon challenge, please visit their fundraising page: https://uk.virginmoneygiving.com/TeamJude 

Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and into surrounding counties. Anyone can make a referral to Alexander Devine Children’s Hospice Service and if you think your child may be eligible for our services, please do get in touch.

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On Saturday 30th October, join us at Liquid Leisure Windsor for its Spooktacular Fireworks Extravaganza 💥

We are so thrilled to have been chosen by the Liquid Leisure team as its main charity for the night and a massive thank you to everyone who is choosing to donate to us when they buy their tickets.

All the fun starts from 4.30pm:
🎃 Pumpkin carving contest
🍬 Trick or treating
👻 Halloween fancy dress competition
🎡 Fairground rides
🌭 BBQ Food
and the night will be topped off with one of its legendary firework concerts! 💥

More information and tickets 👇https://windsor.liquidleisure.com/spooktacular-fireworks-extravaganza

#fireworks #localcharity #halloweenfun #berkshirefireworks
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2 days ago

Alexander Devine Children's Hospice Service

We’re excited to be back at the Oracle shopping centre today for a pop-up sale
👻 Halloween party ware
🎁 Stocking treats
🎄 Christmas cards and wrapping paper

Come and find us on the upper level, outside H&M

100% of proceeds go towards helping us provide specialist care and support to local children with life-limiting and life-threatening conditions, and their families.
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Hands up who helped us make last year’s virtual Santa Dash so amazing? 🙌

Hundreds of you ‘Santa suited’ up and joined in the fun by doing 5km your way all across Berkshire and beyond to help us raise vital funds. From stand up paddle boarding to Star Wars, cycling to beach walks - you certainly sleighed it!

We can’t contain our excitement about bringing this year's Santa Dash back to the streets of Windsor in just 5 weeks. But did you know that if you want to again take part in our event virtually, you can do!

Book your Windsor or virtual place here 👉https://alexanderdevine.org/2021/04/alexander-devines-santa-dash-28-november
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Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.