Alexander Devine supports Baby Loss Awareness Week

We are there for families right from the start to provide support for newborns diagnosed with life-limiting or life-threatening conditions.

This Baby Loss Awareness week, Tamara one of our Clinical Nurse Specialists talks about her experiences and the vital role our service plays in supporting families at the hardest of times:

“Alexander Devine often receives referrals from neonatal teams when babies have complex healthcare needs. We are skilled in providing compassionate care and support for the whole family from the first contact until after a child has died.

 

If an antenatal scan has picked up that a baby has a life-limiting condition, expectant parents can be referred to us. A joined-up approach is important so our Clinical Nurse Specialists meet with the obstetrician, midwives and hospice doctor to build a birth plan for the mother and advance care and symptom management plan for the baby once they are born.

 

Sadly, some of these babies pass away very soon after birth and we ensure they are comfortable to enable the parents to have precious time with their newborn baby. Being able to make special and lasting memories is so important and for many of these families we do what we can to facilitate special photo shoots and imprints of their hands and feet.

 

We also offer either the Dolphin Suite or the use of a cuddle cot, which enables the parents to take their baby home for a few days or spend time within the hospice with the support of the team. We help the families build memory boxes both during the pregnancy and after birth, and extend our support to siblings with specialist play and age-appropriate activities.

 

It’s such a rewarding part of my role as no matter how short a baby’s life is, to be able to offer support to the parents and family during such an incredibly sad time is such a privilege. We can’t make this time any less painful, but we can help ensure each family has the support they want and need and give them a dedicated and private space to be together.”

Need our help?

The word hospice should not seem scary and getting support from us doesn’t have to mean a child’s death is imminent. Helping to enrich the lives of the children and their families is at the heart of our service, our end of life and bereavement support is just a part of what we do.

Our children’s hospice service covers the whole of Berkshire and into surrounding counties. Anyone can make a referral to Alexander Devine Children’s Hospice Service and if you think your child may be eligible for our services, please do get in touch.

Alexander Devine on Facebook

Shades on and chilling in our hydrotherapy pool - how super cool is Pippa?! 😎

Happy Friday everyone ☀️

#FridayFeeling #lifeatourhospice
... See MoreSee Less

View on Facebook

Our gardening club volunteers took delivery of a very special gift this month - a fantastic John Deere sit on mower, which was very generously donated to us by Farol Ltd.

Matt Vellacott, Managing Director at Farol, told us "we are very pleased and proud to help such a worthy cause.”

The new mower was delivered by Farol Twyford's Manager, Barry Sharp. He kindly spent the morning with our volunteers giving them a tutorial on looking after it and showing them how to use it.

Children and families love using the outside space at our beautiful hospice and the new mower will make it so much easier to maintain our grounds for them to enjoy.

Thank you Matt, Barry and all at Farol for your wonderful and generous donation, it really will make a world of difference.
... See MoreSee Less

View on Facebook

Well done to these Spartan heroes! 💪

We are so proud of the team from OpenText office in Reading who took on the mighty Spartan Obstacle Race in Henley earlier this month.

For those unfamiliar with Spartan races, they are obstacle courses that test speed, strength and endurance. The OpenText team had to conquer 20 off-road obstacles, including climbing walls, crawling under wire, traversing monkey bars, spear throws and of course lots of mud!

An amazing challenge and they managed to raise over £725! 👏
... See MoreSee Less

View on Facebook
Inspected and rated Good by Care Quality commission
Registered with Fundraising Regulator
Alexander Devine Children’s Hospice Service is the operating name of Alexander Devine Children’s Cancer Trust. A company limited by guarantee registered in England and Wales No. 5757493

Copyright © 2019 Alexander Devine Children's Hospice Service. UK Registered Charity No. 1118947.